hahaha
link (I can’t do that btw, my skin involvement is mild.)
I guess when that program aired, people were p.o.’d at it, so ABC put a transcript of the interview with like one of the only scientists who is studying EDS. I am taking part in the NIH study mentioned - I had blood drawn for it this week. Those interviews are kind of grim. 
I am doing well in the pool with PT though and am not unoptimistic. 
Interview With Dr. Nazli McDonnell, Part 1
Interview With Dr. Nazli McDonnell, Part 2
Anyway, STEP RIGHT UP here is a free chapbook pdf of my sideshow poems. It is for sale for $5.55 for a regular copy.
Tags: chapbooks, Ehlers-Danlos Syndrome, freakshow, jilly dybka, Poems, Poetry, sideshows, skin, synchronicity